Yesterday was very hard and overwhelming. After extensive ultrasounds, meeting with a neurosurgeon and a high risk specialist, we have not learned anything new or helpful about McKenzie's condition. Don't get me wrong, everyone was wonderfully kind but hydrocephalus is generally a case by case thing, and they can not predict very accurately how her life will be. Unfortunately, the fluid in her brain has increased so that is not a good thing. They are also seeing signs that her skull is fusing together, which shouldn't be happening at all. Plus if she has increased fluid and her skull is fusing, it means a lot more damage to her brain. They are also seeing signs that her right eye could be deformed, smaller then the left, not functioning..they are not sure what's up with that.
She definitely has the bilateral cleft palate and her left hand is deformed. She will have surgery 2-7 days after birth to put a shunt in her brain. Depending on her condition, they will start to do surgery on her mouth at around 2 months of age. The next appointment will deal a lot with the palate issues.
Please continue praying. My sister is not doing well. I think she could cope much better if she has some concrete answers. All of this unknown stuff is so overwhelming to her.
I can't tell you how much your support and prayers mean to my family and I. Thank you so much!