Thursday, May 29, 2008

Some Ramblings and a Prayer Request


This week has been C-R-A-Z-Y! Last Wednesday was McKenna's sixth birthday, and then Monday was Amanda's 13th! This poor mama cried the entire day. Poor Amanda, she took it well. Everyone thought I was upset about feeling old. I'm not sure what that's all about, but I certainly wasn't crying about that. I'm not sure where the time went, or how Amanda got to be 13. She's such a great girl. Of course, we have our moments, but overall, I could not ask for a better girl. She's respectful, understanding, compassionate and kind. I am so lucky to be her mom.




Here is another crazy story for you! A few weeks ago we talked to a guy about putting in a new fence, but never gave the go ahead. Dan woke up the other day and said "That's so strange, I had a dream that I ran a few errands and when I got home that fencing guy had ripped out our fence". I took the kids to school, he went to run errands. He called me a few hours later and said "Uh, you remember my dream? They ripped out our fence!". Yep, the guy showed up, assuming we wanted the fence, and took it out. Dan's brother in law, a pastor, had these words of advice "Next time God gives you a dream like that, act on it before your fence gets ripped out" LOL! Everything has worked out and we love our new fence.

And now the prayer request. I have been thinking for about 4 weeks now that I needed to ask for prayer on this. I don't even know where to start. On May 15, 2003, a beautiful baby boy was born into our family. Little James. I have written a little about James here and there. He is my nephew. When James was 3 months old he was diagnosed with a genetic disorder called Menkes. We didn't know about this disorder. I had a baby brother who passed away at the age of 5 months. We always thought he had died of other causes. Menkes is so rare, that it was unheard of in 1979. We were told James would not live out the year. He would never walk, never talk, be mentally retarded. The list goes on and on. The doctors were wrong about a lot of things. James never walked, but he talked in his own way. He did live out the year, in fact, he lived to be 19 months. He was a blessing, and continues to be one every day.

The prayer request is this. Menkes is an X Chromosome disorder. It is passed from the mother to the son. If you are a carrier of this disease, you have a 50% chance of your son having this disease. There is no cure. My other sister is 11 weeks pregnant, and she too is a carrier of this terrible disease. Her and her husband decided to try and have one child on their own. They understand the risk. Today my sister went and took a special test. Tomorrow we find out what the baby is. If it's a girl, they will quit the test, the baby will not be born with Menkes. If it is a boy, they will let us know and then in 2 weeks we will find out if the baby is healthy or not. It's important to know if the baby has Menkes prior to birth because there are some medications out there that help the quality of life.

Tonight at my bible study we looked a little at this verse. Isaiah 54:10. "Though the mountains be shaken and the hills be removed, yet my unfailing love for you will not be shaken, nor my covenant of peace be removed," says the Lord, who has compassion on you.

My prayer is that whatever lies ahead, that His covenant of peace will not be removed from our family, especially my sister.

Thank you for your prayers. As soon as I hear tomorrow what the tests say, I will do an update on the blog.


-Heather


2 comments:

  1. praying for your sister and the little miracle inside of her.

    wow! that is wild re the dream about the fence. we've had stuff like that happan too! sooo glad it all worked out!

    happy birthday to your beautiful daughter. i understand the mommy emotions. mine is only 2 and i am already going through that. what is gonna happen when she turns 13??!!

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  2. Aside from the expense of it, the fence story cracks me up. That is so wild. Nothing cool like that ever happens to me!

    You spend a day crying when they turn 13, but I suspect the crying last 4 years once they enter high school. Sean isn't even there yet and I'm already having weepy spells. How does it pass so fast?

    Look on the bright side: WE AREN'T OLD YET!!!!! Though you do have those six days ahead of me...

    Reese

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